Merry Christmas and Happy New Year from the Gegen family! I am sorry that I didn’t get Christmas cards out this year. It just didn’t happen and I had to let it go. We enjoyed all the wonderful cards we received and I hope to be back on track next year with them.
2014 has been a very good year for us! The year did still consist of monthly clinic visits and 12 week scans for John, but we were as close to normal as we’ve been since April 2012. All 3 boys played hockey in 2014, we took the train to Chicago for spring break, many weekends were spent having fun in our cheap charlie boat at my parent’s cabin in Spooner or on the river here near Hastings, and we even got up to Walker for some end of the summer fun(No RV this trip!)..just to name a few of the activities we enjoyed during 2014.
We closed 2014 out with John’s most recent set of scans. Yep…on December 31, 2014 we found ourselves once again at Children’s Hospital and Clinics, Minneapolis. I would like to say that John was “rockin'” going into these scans…healthy, no complaints of pain, nothing setting off warning bells. So why did I find myself a COMPLETE MESS?! CMS had returned – Crazy Mom Syndrome – and it sent me into a whirling, twirling downward spiral.
Wednesday…..I put on my best game face and up to Children’s hospital the 3 of us went. When I told John the MIBG scan was first he said, “Easy peasy”. That favorite gal is there! That was over, my untrained eye didn’t observe any “hot spots”, and we were on our way to the next scan. The donut scan (CT scan) not so easy because he doesn’t like the feeling the contrast gives him and on this day he got sick during the scan. I think it had to do with the fact that they had yanked his jersey up and around his neck, taping part of it by his head to keep the rivets (metal circles) out of the CT scanning path and in the process making it tight on his neck. We’ll remember to take it off next time.
We were able to leave the clinic that day knowing John’s scans were all good…a tremendous weight lifted off our hearts, with energy to gear up for the next set of scans in March (March already!!)
I know I haven’t been posting that often. No news is good news! This means our days are mostly filled with the same routines as everyone else. So if you don’t hear….don’t worry. That just means I’m at a hockey practice, a hockey game, or running here and there with the kids. Who knows….maybe I’m even trying to get to bed at a more reasonable time! It means John is fabulous! I will still post occasionally to keep you posted on John and our family.
We are so grateful for all the love and support we have had showered down on us these past 2 1/2 + years. Thank you for helping us to keep on keeping on!
Happy New Year!
Love, Hope and Blessings,
Update: In my last post I mentioned that that Child #1 had hung up his skates…change of plans. We are back to all 3 participating in the BEST SPORT EVER! 🙂